|
My
Story
I don't think I truly
grasped what the phrase "hell on
earth" meant until November 26, 2002. On
that night, the evening before Thanksgiving,
my life took a dramatic turn. Although I've
learned to cope, and have found some relief
from a combination of therapy and psychotropic medication, I will never be
the same person that I once was.
The
First Attack: I had just retired
from my role as publisher of Ellora's Cave so
that I could spend more time with my kids and do what I loved best: write. I
was happy with this decision, elated by it,
and couldn't wait to start pumping out book
after book. Thanksgiving was going to be at my
house that year - the first time I ever hosted
it. I had a brand new house, a brand new
Mercedes-Benz, two happy, successful kids, and
I finally felt all grown up.
It was cold and snowy out
that night. The Matrix was playing on
the DVD. I was sitting in a chair watching the
movie with my youngest daughter when I
became aware of a sensation of tightness in my
chest. I had felt that same curious sensation
the night prior when driving to the Post
Office, but hadn't dwelled on it, and
eventually the feeling went away. The next
night, however, I dwelled on it... and the
feeling didn't go away.
The tightness worsened and
a choking sensation gradually accompanied it.
I began to hyperventilate. My heart rate, as
it would many more times over the years,
skyrocketed. I was nauseous. Dizzy. Chills and
hot flashes racked my body. I couldn't
breathe. A sense of impending doom smothered
me and I knew with every cell of my being that
I was having a heart attack. I was going to
die. "Get Jazz," I gasped to my
youngest, instructing her to find my eldest
daughter. "Tell her to call 911 for
mommy."
I
laid on the sofa as paramedics hovered over
me, hooking me up to all sorts of machines.
Finally, they got me
on a stretcher and in the back of the
ambulance. I remember being certain I'd never
make it to the ER. The roads were terrible -
so icy. It took forever to get there. I made
the paramedics promise they'd tell my husband,
parents and children how much I loved them,
that they were my last thoughts.
The ER nurse fed me
nitroglycerin. It gave me a headache, but
didn't alleviate my symptoms at all. Blood was
drawn. Test after test. My heart rate would
not go down. It was beating so hard you would
have thought I was running a marathon rather
than lying in a hospital bed.
Several hours later, an ER
physician tells me, "I'm not certain what
happened to you tonight, but I don't think
there is anything wrong with your heart."
Not certain? Doesn't think
there is anything wrong with it?
Very comforting.
I was discharged not too
long thereafter. My mom drove me to her house
since it was closer and I slept in bed with
her that night. I cried myself to sleep,
afraid I wouldn't wake back up. Something bad
had happened, something unlike anything I'd
ever before experienced, and I just knew I was
going to die of this undiagnosed illness.
Death didn't come that
night, but two nights later I was back in the
ER again. All the same symptoms and
terrifying new ones: numbness and partial
paralysis. I couldn't breathe. (I can't
begin to describe how terrifying it is to feel
as though you are suffocating.) Again, I was
certain I was dying. I would be certain of
this fact more times than I can count over the
following years.
True
Terror: Nobody told me, or even
suggested to me, that I was having panic
attacks. I went on for the longest time believing
there was an undiagnosed, deadly disease
lurking inside of me that would, sooner rather
than later, kill me. I was in rural Ohio,
God's country, a place where one doesn't
speak of "mental illness" let alone
tell a solid member of the
community that they have one.
The hell of it is, I
believe those doctors gave me panic
disorder. There is a difference between having
a panic attack and having panic disorder, you
see. People with PD have severe, multiple
attacks, ranging anywhere from a few times a
year to several times a day. I was functioning
at the several times a day end of the
spectrum.
If I had been told I was
having panic attacks back when I'd suffered
but one or two of them, there is a plausible
chance it wouldn't have progressed into PD. The
not knowing, and being told "we don't
know what's wrong with you", was
unbearable. I dwelled and dwelled... and
suffered attack after attack after attack. The
attacks would last for an hour or more,
multiple times, every single day. It was, and
sometimes still is, hell on earth.
Medicines:
My primary doctor didn't know how to help me.
He should have referred
me to a specialist the minute he suspected PD.
Instead, he took matters, and my mind and body
in the process, into his own uneducated hands.
What came next would be truly grueling. And
because I was so doped up that I sometimes
couldn't function, I don't recall about a
solid year of my life.
The next year would see me
on a steady diet of drugs. Paxil. Ativan. Beta
blockers. Zonegran. Xanax. Cymbalta.
Nortiptyline. Lexapro. And probably others I
don't remember. Each drug carried its own side
effects. Weight gain was awful. Some medicines induced suicidal compulsions,
horrible feelings of believing I needed to
die. Some just made me a zombie. Some agitated
me, caused me to pace for endless hours. Some
knocked me out, keeping me from believing I
was dying, but preventing me from living as
well.
Eventually I'd had enough
and took myself off all medication. An
unfortunate residual effect of all the drugs I
was fed was that, to this day, I am
medicine-phobic. In other words, I practically
have to be force fed new medicines. If I
haven't tried them before, and am therefore
uncertain as to if they will make me suicidal
or give me some other bad reaction, it's
mission impossible to get me to take it. And I
don't just mean psychotropic medicine, but
also things as simple as antacids and
antibiotics. But I digress...
Without the drugs I could
feel, think and rationalize again. But,
unfortunately, I couldn't seem to rationalize
myself out of having PD. I took up yoga, went
to a counselor, went to a psychic healer. I
would have gone to a witch doctor if I'd known
where to find one. There was no non-medicinal
cure I wasn't game for trying.
I didn't get better. I
lived in a constant state of agitation and
fear.
Therapy:
I told my then-counselor that I
feared never getting better, never working
again, just withering away until I went insane
and died. (FYI: no one has ever gone
insane or died from PD.) She had me do mental homework and we talked
about my underlying fears, but in the end it
wasn't enough. There seemed to be no answer,
no end in sight. I could feel myself getting
worse as the attacks became more and more
frequent. I knew it was just a matter of time
until I started having them all day every day
again. I couldn't live like that, in a
constant state of agitation and unadulterated
terror. For the sake
of my husband and children I knew I had to
keep fighting, but there were quite a few
times I considered giving up and ending the
nightmare.
The thing of it is, there
is no sure-fire way to prevent future panic
attacks from occurring in me. All those months
of not having answers, of wondering what was
going on, took their toll on my mind. Maybe
knowing it was panic would have stopped the
attacks from progressing into PD - maybe it wouldn't have.
Maybe it only takes one measly attack, just a
single moment in time, for the complex human
brain to become self-aware of all the dark,
terrifying places it can take you to. The
person who has never suffered a full-fledged
panic attack lives in ignorant bliss, unable
to fathom this hellish place in the mind that
people with PD are taken to.
God, how I envy those
people.
And how ironic that I was
watching The Matrix the first time I
ever had an attack. Suddenly I understood how
Neo felt... life would have been ignorant but
blissful had Morpheus not enlightened him.
At any rate, I knew I needed intense
therapy, something much more than a 50-minute
session once per week. I found an
anxiety clinic in St. Louis that said they
could help me. I didn't exactly believe them,
but they were reputable. And at this point, I
literally had nothing to lose. I took off for
Missouri a couple of weeks later, hoping, praying,
that this was the golden ticket.
I stayed at the clinic for
3 weeks. It was awful, horrible and wonderful.
It was like boot camp for the brain. The
doctors mentally tore me apart before putting
me back together. They forced me to have panic
attacks - constantly, endlessly - until I just
didn't care anymore. They promised me that the
fear would lessen as I allowed myself to have
them. Eventually, it did.
Those weeks were heaven and
hell all at once. The doctors and nurses not
only induced panic attacks in me, but they
also managed to talk me into trying the
medicine Zoloft. I still remember sitting with
the nurse, Jean, at a table and staring down
at the Zoloft tablet. I cried for about 5
minutes before I found the nerve to swallow
it. They made sure I wasn't alone for the next
few hours to prove to me it wouldn't kill me.
Today:
Over time, I gradually began to get better. I
could get out of the house, drive alone, even
travel to Europe again. I could spend time
with my kids, doing everything from playing
Yahtzee to trekking to Jim Morrison's grave. I
could work to promote my company
and our authors once more, even make TV
appearances. In essence, I now lead
a pretty normal life.
The panic attacks eased, only
resurfacing around my menstrual cycle or in
moments of extreme emotional duress. There are
still days when my mental boot camp training
and Zoloft aren't enough and I need the
additional help of Xanax. But, fortunately,
those days are now more the exception than the
rule. Still, there are also days when nothing, not
even Xanax, will turn off the internal PD
trigger.
I try not to let fear of
future attacks get
the better of me, but I'd be a liar if I said
fear doesn't occasionally surface. My biggest
worry is that one day the mental training and
Zoloft will stop working altogether and I'll be back at
square one.
For the most part, though,
I remain hopeful and optimistic. I have a life
again, and one that I cherish with a depth I
didn't before I developed PD. If there is
anything I can thank the disease for, it's in
helping me realize that spending time with my
loved ones is more important to me than
spending time at work.
If you are having panic
attacks, please don't suffer in silence.
Get help. You are worth it!
Why
People Have Panic Attacks
One
of the first things I learned in St. Louis was
that it isn't possible to rationalize your way
out of a panic attack. Reason being, it isn't
the advanced part of the human brain that is
acting out of turn, but the primitive,
emotional part inherited from our ancestors.
Our body's natural response to a physical
threat is called the fight-or-flight
pattern... it's as instinctual to humans as
migration is to birds because it's what kept our prehistoric
counterparts from being killed off by larger
predators.
If you
walked around the
corner and found yourself face to face with a saber-toothed
tiger, your body would do all the same things
that it does during a panic attack: heart rate
accelerates, thereby quickly pumping blood to
the muscles. Sweating commences, making it
easier for you to slip away and harder for the
predator to hold onto you. Adrenaline races,
giving you the needed energy to stay and fight
the threat or run and flee from it.
A
panic attack is triggered by the very same
fight-or-flight reaction that saved the life
of your grandfather hundreds of thousands of generations
removed when he was faced with a saber-tooth
tiger. The only difference is that when the
bells and whistles go off in your brain and
your eyes visually scan for the threat and
find nothing, your mind turns inward, begins
scanning your own body, and decides there must
be something terribly wrong internally.
Hyperventilation soon occurs as the belief you
are dying kicks in.
To this day,
scientists still do not know what sets off the
misplaced fight-or-flight reaction that PD
survivors are (seemingly) randomly attacked
by. Forgive the soapbox, but we inhabit a sexist,
misogynist society. PD tends
to be dismissed as an "emotional
weakness" because it happens primarily to
women. If it primarily happened to men, you
can best bet we'd have some answers
already.
Scientists can give 80-year-old men sex lives, but
can't find an answer to PD? There is something
terribly wrong with this picture.
Underlying
Causes
For the
better part of two years I listened to idiotic
doctors tell me "it's all in your
head". I almost believed them because
they couldn't find anything physically wrong
with me, but I never quite gave up the deeply
seated belief that something physical had
brought on that first attack. After all, for
about 6 months before my first attack occurred,
I'd had this really weird symptom that no
doctor had been able to plausibly explain to
me: my ears would turn really bright red and
be hot to the touch, like they had been lit on
fire.
I
had at least three doctors tell me it was a
blushing mechanism. (Ooookay.) I obviously remained
unconvinced as I was not a moron and knew what
blushing felt like, but I wouldn't get any answers for
another couple of years. Eventually the
feeling of being lit on fire spread to the
rest of my face and to one of my thighs, but
again I digress...
Finally,
after part of my face went numb, an ER doctor
admitted me into the hospital for tests. My
new primary physician in Florida told him that while I
was in there she wanted me checked for this,
that and the other. I underwent a battery of
tests and, indeed, it all turned out to be in
my head, though not quite in the manner that
my former doctors had thought.
Five lesions
were detected in my brain, indicating possible
Multiple Sclerosis. I was depressed and
elated all at once. I didn't want to have MS,
but after all this time it was a relief to
think I might finally have some answers as to
why this had all began.
MS is not a
diagnosis one can be given on lesions alone
because there are many things, including
smoking and migraines, that can cause brain
lesions. I am still, all this time later,
undergoing MS tests, but at least now the
doctors are taking my symptoms seriously.
In addition
to possible MS, the doctors also found a
condition called Hashimoto's Thyroiditis
in me as well as another condition called sleep
apnea. Hashimoto's means the thyroid is
dying, but isn't quite dead, so it doesn't show
up in traditional blood studies. (You must ask
your doctor to check for HT specifically and
will probably need an uptake scan to confirm
it.)
Sleep
apnea is a condition where you quit breathing
in your sleep and never enter full REM. The
result is you believe you have slept, but are,
in fact, sleep deprived. It causes depression,
anxiety, fatigue, sensory changes (i.e.
tingling and numbness), and a slew of other
problems. If you snore, it's a good indication
that you might have sleep apnea.
At any rate,
both Hashimoto's and sleep apnea feasibly
explain the symptoms that led to my first
attack. MS would explain the feeling of being
lit on fire if it turns out I do have it. If I
don't have it, then I will seek further tests
until I do find what's wrong.
Not everyone
will get their first panic attack for the same
physical reason, but I will always believe in
my heart of hearts that there is indeed a
physical root for every panic attack
sufferer out there. Doctors used to say that
certain ulcers were caused by stress, only to
find out later that they were caused by
bacteria. In other words, they don't know everything, they
just pretend to.
If you feel
something is wrong with you and your doctor
doesn't take you seriously, don't listen to
their BS. Go to a different doctor - and
another and another - until you finally find
one that takes you seriously and is willing to
inconvenience their self long enough to solve the
riddle. If I had stayed with my first doctor,
I'd probably be in an institution today,
convinced I was crazy and it was "all in
my head."
During
college, I learned in Bio-Psych that it is
impossible to separate the psychological from
the physical because they affect each other at
every turn. Every illness seen as mental
should be studied to find the physical cause.
Panic
Attack Symptoms
4 or more of
the following, reaching an apex within 10
minutes:
- a
feeling of imminent danger or doom
- the
need to escape
- heart
palpitations
- sweating
- trembling
- shortness
of breath or a smothering feeling
- a
feeling of choking
- chest
pain or discomfort
- nausea
or abdominal discomfort
- dizziness
or lightheadedness
- a
sense of things being unreal,
depersonalization (example: see people
talking, but cannot understand what they
are saying)
- a
fear of losing control or "going
crazy"
- a
fear of dying
- tingling
sensations
- chills
or hot flushes
Because
panic attack and heart attack symptoms are
hauntingly similar, if this is your first
attack, please seek medical help
immediately.
Getting
Help
I only feel
comfortable recommending what worked for me -
the Saint
Louis Behavioral Medicine Institute - but
there are many different programs out there.
SLMBI is awesome... I can't say enough good
things about their program and staff. They use
a combination of cognitive-behavioral therapy
and medication dispensed by a highly trained
psychiatrist who specializes in anxiety
disorders. SLBMI is world-renowned and touts a
heady success rate.
If you suffer from
PD or any other anxiety-related disorder,
don't wait! Call them today. You are worth
it!
|